MedSciNet has implemented and helped launch The Preeclampsia Registry. The registry is sponsored by Preeclampsia Foundation, a U.S.-based not-for-profit patient advocacy organisation established to increase public awareness of preeclampsia.
Preeclampsia is a life-threatening disorder that occurs during pregnancy and the postpartum period and affects both the mother and the unborn baby. Affecting at least 5-8% of all pregnancies, preeclampsia is most often characterized by a rapid rise in blood pressure that can lead to seizure, stroke, multiple organ failure, and death of the mother and/or baby.
The purpose of The Preeclampsia Registry is to collect and store medical information, family history, and other related information from patients affected by preeclampsia and other pregnancy disorders such as eclampsia, HELLP syndrome, and gestational hypertension. The collected data will be used in medical research to better understand preeclampsia and its effects, both during pregnancy and long-term.
The Preeclampsia Registry is the first registry of its kind to focus solely on hypertensive disorders of pregnancy to bring together survivors, family members, and researchers from all over the world with the purpose of developing a comprehensive picture of preeclampsia and discovering preventions and treatments, including ones that will reduce its long-term impact.
To learn more, please visit Preeclapsia Foundation's website at www.preeclampsia.org.